NARDS Vision and Mission Statements
To ease suffering and enhance the quality of life of individuals having the cutaneous manifestations of rheumatologic diseases.
Promote better understanding and improved treatment of the skin changes that are seen in individuals suffering from rheumatologic diseases (eg, lupus erythematosus, dermatomyositis, localized scleroderma/systemic sclerosis, vasculitis) and promote interest and training in this subdiscipline by future generations of dermatologists.
The initial strategic direction of this organization will be to promote:
- Research in the field by establishing a mechanism that will facilitate the successful performance of systematic multicenter studies relating to the epidemiology, sub-phenotyping, etiopathogenesis and treatment of patients with the cutaneous manifestations of lupus erythematosus and dermatomyositis.
- Patient and physician education via web-based materials concerning the diseases in our scope and through initiation of an annual NARDS meeting for physicians in the near future.
- Physician training and career development for those medical students, dermatology residents, and junior faculty members with an interest in rheumatologic skin disease.
Victoria Werth (University of Pennsylvania)
Kari Connolly (University of California San Francisco)
Jeff Callen (University of Louisville)
Melissa Costner (North Dallas Dermatology Associates)
Mark Davis (Mayo Clinic -- Rochester)
Jan Dutz (University of British Columbia, Vancouver)
David Fiorentino (Stanford University)
Andy Franks (New York University)
Lela Lee (University of Colorado)
Richard Sontheimer (University of Utah)
Carolyn Bangert (The University of Texas Medical School at Houston)
The organizational meeting of the North American Rheumatologic Dermatology Society (NARDS) was held on Monday, November 13, 2006 at the Grand Hyatt Hotel in Washington, DC in conjunction with the meeting of the American College of Rheumatology annual national meeting1.
1 Costs related to this organizational meeting were generous supported by funding from the Medical Dermatology Society
Rationale for Establishing this Organization
A small number of the same USA and Canadian dermatologists have regularly attended the annual national meeting of the American College of Rheumatology (ACR) over the past four decades. In 1994, this group of individuals organized the ACR Skin Diseases Study Club that has met annually since then as a component of the ACR national meeting. During the first week of September, 2004 many of these same individuals attended the First International Conference on Cutaneous Lupus Erythematosus in Düsseldorf, Germany that was sponsored by the Department of Dermatology of the Heinrich-Heine University. This proved to be a highly stimulating, multidisciplinary meeting held over four days that generated thoughtful discussions and opportunities for future international collobaration concerning clinical phenotyping, etiopathogenesis, and management of a single rheumatologic skin disease -- cutaneous LE. The Second International Conference on Cutaneous Lupus Erythematosus was held on May 12-13, 2008 in Kyoto, Japan.
A new society, the European Society of Cutaneous LE (EUSCLE), was organized during the First International Conference on Cutaneous Lupus Erythematosus. The USA and Canadian dermatologists who attended the First International Conference in Düsseldorf left that meeting with the kernel of an idea that an organizational structure similar to EUSCLE was needed for North America. That kernel is currently budding as NARDS.